In This Episode
I was invited to be part of the speaker faculty for the Inaugural Connecting Circles of Care & Building Bridges of Hope Dementia Cruise & Conference this past April.
That’s where I met Phil Gutis, who became our Assistant Sherpa here on the show. And that’s also where I had the great good fortune of meeting Steve & Debbie Giblin.
Steve is Debbie’s husband and care partner. He was an inspiration to every care partner I talked to. Debbie has a smile that lights up a room. She’s living with a diagnosis of Posterior Cortical Atrophy, or PCA for short.
According to the Alzheimer’s Association, “It is not known whether posterior cortical atrophy is a unique disease or a possible variant form of Alzheimer’s disease.”
Debbie has given permission for Steve to talk about her particular diagnosis because it’s something that most people haven’t heard of before…including the professionals she sought out for help with her first symptoms.
Be sure to check out the show notes below for links to resources mentioned in this episode.
Mike Good founded The Alzheimer’s Podcast in May 2017. Christy appears as a guest in episodes 15, 19, 21, and 23-26. She became the featured expert on the show starting with episode 28 and appears in every episode after, except 56. When Mike decided to follow his bliss, Christy took over the show in January 2019.
Further information and resources related to topics mentioned in this episode:
- Episode 111: Steve & Debbie: “Together we can. Together we will.”
For Care Partners
Dementia can last 20+ years. That's a long time to struggle with trial and error!
If you're ready to step out of overwhelm (and anxiety about the future), click the button below now to schedule your complimentary Dementia Caregiver Strategy call with Christy. (Mobile users, click HERE.)
It's time for you and your person to step into the life you deserve.